The journey of a train enthusiast on the spectrum of reality seperate-titus

IMG_0810Cooper is my 13-year-old son who Lindy Hops on the Autism Spectrum. I have written about him as a child and his rabid fascination with NJ Transit, not trains but Transit trains specifically. The one thing that you should know about Cooper’s different-ability is it is wildly specific. It’s not spaghetti its spaghetti with Pomodoro sauce from Daniella Trattoria in NYC (not an ad, but could be an ad, if you are willing to pony up a few plates of pricey pasta for him). Okay, I could spend an entire story catching you up on Cooper but instead I am going to jump to the recent iteration of what we refer to as “Life With Cooper”.

Cooper’s joy the last several months is “working” the trains whenever possible. He spent time thinking he could be satisfied traveling various train lines, some of which include but are not limited to: Trenton, Montclair State University, North Jersey Coast in New Jersey. Oyster Bay & Long Beach on Long Island and countless requests for Amtrak, although to date I think he realizes that this without tickets is prohibitive. Word has it he was permitted a ride on Amtrak from Newark Penn to New York Penn one day, but I think travel outside the tri-state area will have to wait. Now if you are thinking, what irresponsible parenting letting her son ride Transit without supervision, please stop reading and return to your perfect parenting, because mine is an imperfect household filled with the perfect understanding of our shortcomings. So, Cooper “works” for Transit.

Friday night lights, filled with horns and bells
The movement beneath his solid stance feels easy.
4632 to Bay Head making stops at…

Saturday runs to and fro starting with Les and ending with Randy
The rhythm of the tracks the only steady in his brain
7695 to New York City making stops at…

Sunday is reserved for morris/essex maybe multis or commons
The traps and the doors every task he will sharpen his skills
7920 to Dover making stops at…

Cooper and I were on our own a few weeks ago while Doreen and the girls were in South Carolina. We were in a nice routine together and he took time away from his busy work schedules to be with me at the theatre or at home, so the only time he “worked” was when we were riding back and forth on the train to my work. Wednesday night we were on our way home after the show; typically Cooper isn’t on Wednesday night trains because of therapies or school, but this week was special. The rules are always the same when Cooper is with me at theatre in the evenings, he leaves the Palace early so he can find out what track our train will be on and secure the first four-seater at the front of the train, on the top left hand side specifically, for me to sit in with his skateboard and back pack while he works. He loads his pockets with schedules and maps in homage to his heroes, the conductors. A few of these conductors are super friendly to Cooper, they give him old zone maps and let him help with the traps at the train doors, they are okay with him trailing behind as they check tickets or letting him announce the stops throughout the lead train car. Cooper carries my work flashlight at night so he can wave down the platforms to the ticket takers signaling the all clear at station stops, when instructed of course. The night before, Cooper sat with one young conductor having a pretty incredible conversation about engines, equipment, schedules and the recent cancelations. It was a really friendly conversation that made my heart full and proud. I guess you might say it was a parental high to hear your son, who doesn’t always know how to conduct himself in conversation, really engaged. On this particular Wednesday night I was in my seat early so I got to hear his exchanges with familiar people (and some not familiar) as they boarded the train. These were far more typical of Cooper’s interactions; some of the guys would ask, “how many stops to Orange?” and Cooper would quickly rattle off a response which includes what zone that stop is. Somebody got on asking if the train stopped in Newark Penn to which Cooper replied, “No, you need to get off this train and go to track 7 I believe that is where the train to Trenton is. This train doesn’t go there.” A lady across the aisle smiles at me as she hears men board the train with greetings of, “hi ya Coop?”, “how’s it going tonight Cooper?” Cooper will assume a voice of a conductor he spends a lot of time with, “how’s it going? Very good, very good.” Pretty typical stuff. This Wednesday  was a pretty crowded train so I was sharing my four seater suite with a few commoners that didn’t realize that I was train royalty because of my association to Cooper.

We were about 15 minutes into our journey, having just left Secaucus Junction, when I hear the actual conductor talking, he is one of the grumpier fellas, but I cannot make out what he is saying. A few minutes later Cooper appears in front of me, his brow furrowed in distress. “Can you come with me please?” He says in a low sweet voice. Knowing that this is serious I grab all my wares and Cooper’s skateboard and backpack and as I head back to the rear of the car after Cooper I continue to hear the conductor talking to someone. I punch through the door into the train’s vestibule where Cooper is standing on a trap looking out the window with his head low. I said softly, “did you get in trouble buster?” and he turned to me crying, lowered his head on my shoulder and said, “he took my maps, he said they were Transit property and I wasn’t allowed to have them.” I said, “Did you explain that you had been given them Buster?” The tears were coming harder when he said, “I want them back.” I was in a parenting pickle, I wanted to march up to the conductor and give him an ear full, but frankly the way Cooper processes information I didn’t want him seeing me barking at a conductor as a solution. I continued to comfort him and said, “Buster, obviously he doesn’t think you should have them and that they are Transit’s property. Do you want to go ride in the back of the train?” “No, I want to get off at Broad Street and Lyft home.” I hugged him harder and said that wasn’t going to happen, but we could sit in a different car. Suddenly the door opened behind me and it was the conductor he sees me and hands me the maps saying, “I didn’t realize you were on the train,” he recognized me, “here I’m giving these back to you.” He says handing me the maps, “but he shouldn’t have them, so he should put them away.” He went on to say, “I had my bag stolen so I saw those maps and you know it set me off.” I calmly said, “he was given those maps sir, he didn’t steal them.” “Oh, I know” he responds quickly, “it’s just there is another kid who walks around on these trains and he’s really crazy.” Referring to another kid that I see Cooper with who is also clearly on the spectrum. He then says, “come on now, stop crying, big men don’t cry. Stop.” Now I actually want to punch him, not only has he referred to a kid as crazy but he is now shaming my son for being upset. I can tell Cooper is trying to stop, wiping his eyes and nose on my shoulder so instead of letting loose on the conductor I say to Cooper, “Did you hear that Buster, he had his bag stolen and so he got mad when he saw your maps thinking they might have been his.” That ended the exchange and Cooper and I went to sit at the end of the car on benches until we got home. As we left the train a fellow theatre commuter, a musician, asks if Cooper is okay and said to me he tried to reason with the conductor about what a good kid Cooper is and how he loves the trains, but he wouldn’t listen. Cooper was quiet when we got home, he just wanted a bath and an ice pack and went to bed. His spirit was broken. I had no idea if I had done the right thing as a parent, I mean should I have said to the conductor; you know what, fuck you and your big man bull shit, he’s my son and he can cry if he wants to because you were a dick and took away his maps. Furthermore, if you had an aware bone in your fuckin’ body you would know that he is autistic and not “crazy” you douche bag… But I didn’t say any of that, I just didn’t want Cooper to think anger is the way to deal with problems.

This incident had me a little shaken the next day, I further advised Cooper to keep his maps low unless he knew the conductor was a friend. I also reminded him that the conductor from last night wasn’t bad he was just upset about his bag. I considered having Coop take a train break but that’s like suggesting a bull dozer go easy. So Friday that week off Cooper went on a journey while I was at work. Within a few hours he was calling me to report that his conductor buddy Randy had given him an up to date zone map for the Morris Essex line and he was thinking maybe he should give it to the conductor from the other night who had his bag stolen so he could replace his missing maps…

I think that’s my son displaying empathy or ready to show that conductor who was the real “big man”. Maybe, just maybe it was a parenting win after all.

Andre, the train giant

IMG_2946My ten-year-old son Cooper comes with a host of puzzles and a load of obsessions. Somedays we deal with these puzzles better than other days but trust me when I say everyday you deal with them, there are no days off. Now, the other side of that statement; trust me when I say I wouldn’t want a day off from Cooper.

One of Cooper’s “obsessions” is New Jersey Transit. Not just trains but the mighty transit system that runs through our town and many other towns in the great state of New Jersey. Each of the systems many corridors of travel hold exploration possibilities for Cooper. He knows the stations and wether they come with a gap at boarding or have gates that come down to stop pedestrian & automotive traffic. He knows the engines and has definite opinions about the various passenger car options. This goes way beyond the next station stop is… Over the last few years I have taken Cooper on many a train ride to destinations that provide nothing more than a train ride back to Maplewood. #LifewithCooper is the hashtag I established to accompany several of our journeys.

During our travels Cooper has made an acquaintance with several of the conductors. Many of them provide him with seat checks and a friendly nod.  There are a few who have a fondness for Cooper’s fascination with the transit and have gotten to know him by name. I know this because I hear them say, “hi Cooper, where’s your mom?” That’s me “Cooper’s Mom.” Then, about 6 months ago Cooper met a conductor on the Dover line that gave him a job. Cooper was sitting in the front of the train near the engine but before the engine is a door lead to an open space. I was sitting in a seat on the bottom of the train where I could hear what was going on but giving Cooper his “space”. This conductor saw Cooper staring at the engine and had a brief exchange about what kind of an engine it was and why it was such a good engine, then he told Cooper to not let anyone go through that door because it was dangerous. Cooper dutifully performed this task until we got to our stop. We got off the train and the conductor told Cooper “thanks for helpin’ man. good job.” The next week Cooper wanted to take the same trip to see his friend who had given him a job. We did and again this Conductor took a genuine interest in Cooper. I introduced myself and quietly explained that Cooper wanted to take this train so he could see him. That was the day Andre came into our train travel life, we would take an early train to Dover so we could accompany Andre to Maplewood several times over the next few months. Andre introduced Cooper to his engineer, Art, taught Cooper about “zone-numbers” and had him study the zone chart, he taught him about greeting customers and cutting tickets. He even showed him the button configuration for opening doors. Super nice guy with boys of his own who seemed to love his job, he even gave Cooper a little bag of treats the Saturday after Halloween. Then in mid November, just before Cooper’s birthday, we got on the morning train and transferred  at a different station just to mix things up. The train pulled in and we ran to the front of the train, where the Conductor is, and it wasn’t Andre. Coop asked the man right away where Andre was and the man responded that, “he doesn’t work this train anymore.” I headed back to find a familiar face and one of the ticket collectors came up and said he knew we were looking for Andre but he had been “bumped.” This is a apparently a process where Transit employees with more seniority can take over certain schedules. Cooper was gutted and honestly so was I. We took to some other train lines after and found Engineer Art, but no Andre. Then on New Years Eve I agreed to take Cooper on a long journey to Montclair State University train station which involved going to Broad Street Station and transferring to the correct train line. As usual when we boarded the train Cooper asked the conductor if he knew Andre and he said yes and thought maybe Andre was at Penn already, if he was working that day. Needless to say we went all the way into Penn to search for Andre before heading to Montclair U. Cooper took my phone into the crew room at Pennsylvania Station and started showing pictures of Andre but it didn’t appear he was working that day. We continued on our journey and on the way back home I got a phone message from ANDRE! I had forgotten I had given him my number in case he wanted to arrange tickets to take his wife to see the show I was working on at the time. The conductor from earlier in the day had run into Andre and told him Cooper was looking for him. Cooper was elated and Andre and I texted back in forth about his train schedule because he wanted to see Cooper because he had something for him.

After a healthy back and forth and discovering we were not going to catch him on the train over the holiday I asked Andre if he would like to stop by our house to see Cooper and bring his boys with him to play. Andre, who lives in a neighboring town, did come over. This gentle giant was decked out in civilian clothes right down to his Lebron James Soldier 6 tennis shoes and you would think Cooper saw the president walking up to the house. After an introduction to all the children and a show-and-tell of Cooper’s trains, Andre presented Cooper with a present of a real NJ Transit conductor’s hat that he got with that year’s uniform allotment. Cooper was understandably excited and proud to have the very hat he had admired many-o-times on our train journeys, but I can honestly say that the time that Andre spent with Cooper and the genuine interest he took in him will always leave the most indelible mark on my very special boy.

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